I desperately wanted to cave into the fear and scream and go berserk, but I chose to have courage and walk through the fear believing that God was by my side. Some of the posts on While I'm Waiting contain clickable affiliate links. Right before her very last check-in, she told us that this was the most critical part of the surgery. A week after the surgery, he went into respiratory failure. When she moved home and became his caregiver, she was looking forward to hanging out with her brother again and doing fun things together, like going to movies, bowling, and shopping. They felt he would have some coordination issues and things wouldn’t be exactly how they once had been but said he would go to college and do most anything he wanted to do with accommodation. Directly across from the bed in TJ’s rehab room was a white board with the names of his rehab doctors and therapists. It was a tender place where my soul was cared for, and I felt the presence, love, and mercy of the Lord. What about you? Hebrews 10:23“Let us hold unswervingly to the hope we profess, for He who promised is faithful.”. Bridge I will run and I will not be weary I will walk and I will not faint I will rise up on wings as eagles What a blessing she had been given from the Lord. He enjoyed joking around with his doctors and therapists and was especially fond of tormenting his pediatric physiatrist, Dr. Landry. I was sitting in the room with TJ like I did every day when he signaled that he wanted to ask me something. TJ was improving, and we were hopeful again. Due to the heart’s familiarity in the window, I sometimes forget it is there. I dreamed and planned but, honestly, I didn't have the courage to go for it. Why Should You Shop from Home More Often. Sorry, your blog cannot share posts by email. Laundry.”, When I arrived at TJ’s room later that morning, the nurse excitedly — and with a few giggles — retold the story and added, “I wonder how long he has been lying in that bed, staring at that board, and planning to change Dr. Landry’s name?!”. I've been looking forward to seeing you all week! He had never really had a nice bedroom before, so we were very excited about the opportunity to surprise him. Yesterday, it caught my attention, and the memories began flooding in. (Psalm 23), The God I know sent his Son Jesus to die so I could have eternal life. That was brutal news for a sibling to hear. I chose to trust Him, and He showed me He was with me every step of the way. As for Me and My House. He was hallucinating and saying crazy things. Some of the posts on While I'm Waiting contain clickable affiliate links. Read more. At that moment hope sprung to life again within me. Swallowing was still very difficult. A few days later, I finally introduced myself. She was fiercely protective of him and was his biggest advocate……but she also made him do things that he didn’t want to do, and now that he was older, he wasn’t so compliant anymore. During our visit, we spent the weekend laughing, crying, and talking about our sons and the memories they left. That was all the motivation I needed! But since coming home, all they had done together was sit in a hospital. His speech therapist thought that he would talk again, although his voice might sound different. Laundry. We even looked somewhat alike, and the nurses from time to time got us confused. April 17, 2019 staff Music 0. In early October, I asked for a transfer back to Mayo, so he was loaded up onto a helicopter and flown to Mayo for a second time. Questions like “What happened to our son?” and “How can we help him if we don’t know what’s wrong?” plagued us day and night. “Since TJ’s brain injury, I had a more intimate relationship with the Lord than I had ever known. Before he left, I told him I hoped one day when he and TJ were better, they could meet. Many times during physical therapy, they both walked back and forth in the gym with their therapists, and as they passed by one another, they held their hands up high to give one another a high five. All three of us sauntered down the stairs to the bedroom together to reveal the surprise. As I walked through the center courtyard at Jordan Creek Mall, the chorus to the familiar Christmas song “It’s the Most Wonderful Time of the Year” rang out. God loves us, and even though we may go through incredibly painful events in our life, if we choose to focus on Him and not on our circumstances, we will see His loving hand guiding, directing, and providing for us. She was wonderful at it. True to its slogan, The Ronald McDonald House is truly the “house that love built.”. So, dear one, if you are struggling this holiday season with the death of a believer who has passed on before you, remember that your sorrow has not gone unnoticed. Doctors were unable to explain why this was happening. While I'm waiting Tabbed by Stacy Cline.. / ,,,,,this was done in C major ...I just changed it over to G,,,,, / [Intro] G D C x2 / [Verse 1] G D I'm waiting Em C I'm waiting on Y Kelly Denham’s hope for readers is that they’ll understand what God’s love truly means and that even in times of suffering and loss, His love never fails. Crazy Faith is the fifth studio album by John Waller. It was a time of excitement, laughter, and happiness, and it left us with a lot of fond memories. For quite some time now, I’ve been writing a book about my son TJ. She dressed him, carried him around, painted his fingernails, and styled his hair with barrettes. On a personal level, The Ronald McDonald House was a place of refuge for me. For the believer, death has no sting, and the grave has no victory! Hello, Friday! “When I walked into the brain injury rehab facility, the first thing I saw was a picture of an owl. Relief washed over me. I love this poem, and it reminds me that what God values is different and better than what I value. Because God says repeatedly in the scriptures that He loves us and is present, we can rest assured that He is, whether we feel His presence or not. His eyes were pointed down, and he tilted his head back to look at us. They were definitely partners in crime. It was a beautiful, intimate wedding. It was a place where I could escape the stress of the hospital for just a moment and collect my thoughts and center them on God. There are moments of laughter and joy and moments of pain and sorrow. Definitely made me look back and realize they really are happiest when they are where they feel they belong. 492 talking about this. The PICU at Mayo Clinic is in the shape of a horseshoe with patient rooms occupying the outside of the curve. I was really hoping and praying we would get a diagnosis and then they could fix him. TJ’s youth pastor and kids from his youth group came back to the room to show their support. We just happened to be there on the same day, at the same time, and in the same building. Other days she lined TJ and her stuffed animals up in her room and made them sit at attention while she played teacher and gave them homework, and once in a while she drove TJ around in her little pink motorcar. But as the hospitalization drug on and TJ’s health declined, for the first time, Chandler began to understand how stressful and exhausting it was taking care of him. After another two-and-a-half-week hospitalization in Des Moines for an intestinal infection, his twisting became so severe that his shoulder and wrist were dislocating and he was arching his back so bad that it was cutting off his airway. This is already hard enough, and you don’t need to make it any harder.”. I believe in all of the products that I personally feature on this site and would never recommend them if I didn't absolutely love them. Many times during this hospitalization, Chandler expressed frustration about TJ being in the hospital. We were trying desperately to suction him, but because he couldn’t open his mouth, we couldn’t get the secretions out. I wanted so badly to talk to her. This means that if you purchase a product from one of these links, myself or another blogger may earn a commission. My mind ran the gamut of what ifs, and I burst into tears. I imagined they were either thinking that I was behaving very inappropriately for laughing at my son’s condition or that I was having a nervous breakdown and needed to be thrown in the nearest padded room immediately. He was getting stronger and could walk on his own with just one person gently guiding him. But scripture also says that the person who lives with a broken spirit will feel the effects of it right down to their bones as their defeated attitude saps them of all their strength. Sometimes during therapy, TJ and Tom were in the gym at the same time. He was lying on the gurney making a silly face at me, so I snapped a picture. God’s presence was so near to me at that moment, enveloping me, drawing me closer. God is good, but the waiting is very hard. Two and a half years later, TJ would also pass away at the age of 21. This means that if you purchase a product from one of these links, myself or another blogger may earn a commission. 6 people found this helpful. Despair was knocking on the door, and it was a battle to fight it off. About a year later, Tom’s Leukemia came back, and after a long, three-year, hard-fought battle, he passed away in late summer of 2015 at the age of 21. It was the last time TJ ever saw Tom. We ate lunch at the Canadian Honker, took coffee breaks at the Caribou across the street, and once in awhile went for ice cream. “Fear not, for I am with you; be not dismayed, for I am your God. What.a.day! As the thunder rollsI barely hear You whisper through the rainI’m with youAnd as Your mercy fallsI raise my hands and praiseThe God who gives and takes away, And I’ll praise you in this StormAnd I will lift my handsThat you are who you areNo matter where I amAnd every tear I’ve criedYou hold in your handYou never left my sideAnd though my heart is tornI will praise you in this storm. I am among all truly blessed. I saw them walking up and I was in complete disbelief. At one time he whispered, “This is miserable.”. The first thing he said was, “Mom, I didn’t die.” Sigh. We were standing in the hallway just outside TJ’s door when the doctor asked how TJ was doing. The nurses told me the sickest kids are in the corner rooms because the corner rooms are the largest. Doctors were puzzled. “I don’t know. Doctors said they saw no reason why his improvement shouldn’t continue. While I'm waiting I will serve You While I'm waiting I will worship While I'm waiting I will not faint I'll be running the race Even while I wait I'm waiting I'm waiting on You, Lord And I am peaceful I'm waiting on You, Lord Though it's not easy But faithfully, I will wait Yes, I will wait Chandler Moore) - Travis Greene, слова и аккорды на KG MUSIC. I will strengthen you, yes, I will help you, I will uphold you with My righteous right hand.” Isaiah 41:10. He was coughing and coughing and choking, and it went on and on for hours. They then put chest tubes in, which are very painful, to remove the air. Exhausted, I laid down on TJ’s couch. It was almost as if a light switch in his brain had been flipped on. In one corner of the room was a very large closet with a hanging bar and rows of shelves for storing his paintball equipment, and in the other corner on the same wall was a small bathroom with a sink, toilet, and a corner shower. Add To Cart Add To Cart. (Psalm 23:4), The God I know says He will be with me always, even to the end of the age. TJ had a sister named Chandler. He’s going to be fine. A mother's pursuit of God while she waits for heaven, 1 Corinthians 15:55“O death, where is thy sting?O grave, where is thy victory?”. China was the trip destination TJ chose for his wish from Make-A-Wish. Ten years ago we moved into this house and for ten years, we made the house work. Reviewed in the United States on June 25, 2013. TJ’s heart surgery took around six hours. During intubation, his lungs had been over inflated, and the increased pressure blew holes into his lungs. The surgeon came out after it was over. There are dates and events that, no matter how old you are, you can look back on and remember - Homecoming is definitely one of these events! Several times after thinking of someone I hadn’t spoken to in a while, I would receive a text message from that person. Later in the day, the pediatric psychiatrist and a resident came by like they often did a couple times a week. Verified Purchase. I will worship while I'm waiting I will serve You while I'm waiting I will worship while I'm waiting on You, Lord. God has provided me with an amazing editor, and I’m excited to see what becomes of all this. Her wedding venue was our family room. The sickest kids have the most equipment and need more space. During that study, I learned that the Christian life wasn’t just about believing IN God, but it was about believing what God says and taking God at his Word. The heart logo is the symbol that represents the love the charity has for its families. We had done all we could do for him and taken him everywhere we could think of, and it was time to let him go. This song ministers to me cause my husband don’t know the Lord and I’m waiting on my husband to give his life to Jesus. Many times during TJ’s illness, God showed me that He was with me and was walking right beside me. Stock No: WWDL128879-10. On Tuesday, it was after 9pm when I finally pulled into our driveway. What about you? TJ was two years into his brain injury and had just moved back home two months prior. His MRI had a few little infarcts on it, which are areas of oxygen loss, but they said it wouldn’t be causing what was going on now. $9.49. The Blessing. As the week progressed, he continued to worsen. She built TJ up and told me he was still a cool kid even if he couldn’t talk. Suddenly, Janet and Tom came into my view. What do we do during the times when we don’t feel God near? Faith is tested, tears are shed, and grief is shared, bringing readers full circle to the encouraging hope of God’s healing. They were discharged from rehab within a couple days of each other, and we hoped one day we would see each other again. John Waller. $10.49. Travis and I stayed with TJ until we were shooed out. They were quite entertaining to watch. The owl sitting on my fence the following morning was proof that Aiden and I had been correct about our assessment of the strange noise the night before. Well, a few months ago, he began leaving hints here and there that a year has come and gone. I still plan to post on my blog, but it will be sporadic. God sees your struggle, and He reminds you in His Word that this struggle is only temporary. TJ and Dylan became very close during TJ’s time in Dallas. A very determined TJ, intent on a mischievous mission, walked over to the white board and erased Dr. Landry’s name with his fist. Phew - it's been a doozy of a week! We had gotten through it. One morning I entered the PICU and noticed the young man’s room was full of medical staff. Chorus Woah Woah Woah I believe, I will trust in You. I didn’t want to remind him of all of his deficits and squelch any shred of hope he — or I –had, so I answered, “Sure, of course, you can still get a mini fridge.”  But then after answering, I immediately felt terrible that maybe I had just given him false hope. It has been a few weeks since my last post, and I’ve received some questions lately as to what’s going on in my life and why I’m not posting. We attend Christmas parties, enjoy our favorite holiday foods, and delight in the wonder and excitement dancing in our children’s eyes. February 27th is fast approaching. $10.49. Immediately after, the neurologist then came in and said they were now going to test for another autoimmune disease called Guillain-Barre. What a pleasant surprise! The doctors were very confused about what was happening to him. The only time he received relief was when he slept at night. A walkway connects the rooms and curves from one end of the horseshoe to the other. I will run and I will not be weary I will walk and I will not faint I will rise up on wings as eagles Download single from Travis Greene titled “While I’m Waiting” featuring, Chandler Moore. You will see them again. This time of year will always be a hard time of year for us. Follow While I'm Waiting on WordPress.com Recent Posts. Remind yourself often of times when You did feel Him walking beside you. Chandler pretended she was the mother, and being the easy-going child that TJ was, he did whatever she told him to. '” I believed those words and trusted that even with a brain injury, God still had a plan for my son and would give him hope and a future. Ticked by, it was after 9pm when I finally pulled into our driveway Tom would yell, TJ... The actor Kirk Cameron eyes lit up northern side of our family sobbing... 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